One of the last pictures of Princess Diana showed her holding a disabled baby during her land-mines visit to Angola in 1997, just a couple of months before she died. She had found the child huddled in blankets in the corner of a dark hut, hidden from view because of the shame felt towards disabled people in that community. She had somehow sensed that there was someone inside, and walked in, looked round to see a huddle of blankets in a darkened corner, picked up what turned out to be a child with polio, and cuddled this child throughout the interview with the world’s TV looking on. The child’s mother looked up at the Princess with awe and love. In a society where she had always been made to feel ashamed of her child, this beautiful, rich, influential princess had shown this one child love, as if it were special.
Indeed the word special was used for a long time in the UK as society fought against prejudice and sought to release disabled children into a life in which they too would be part of society. Slowly, disabled children were brought into ordinary schools, and today, with additional help, all schools are inclusive in the UK, and take in all children whatever their ability or disability. It is illegal to refuse a school place or a job to someone on the grounds of their disability, and it is the responsibility of the employer to ensure his or her workplace is equipped to enable disabled workers to work there.
In the past disability was considered a punishment from God, which displayed some terrible sin a person had done in the past. This turned out to be a strange belief, since for it to apply to a baby born disabled, which used to be the most common cause, it would imply reincarnation, something the Church didn’t want to agree to at all! Nevertheless the idea that God had punished someone’s child ensured a lifetime of neglect and mistreatment for the child, and shame for the parents, and inaction from the community.
As illnesses like polio became less common because of the vaccination programme, people began to believe they could affect disease and afflictions of the human body without God’s interference. Men injured at work and women in childbirth could be saved, their wounds staunched and penicillin stem the risk of infection provide the new disabled, people who consider their affliction as accident rather than punishment. Many of today’s disabled are the result of the 3,000 road accidents in the UK, several thousand which result in permanent disability. In the UK, where most babies are born in hospital, premature babies as young as 23 weeks can be saved by artificial incubation, but often end up with some form of disability. It seems ironic to me that we spend so much money saving scarcely viable babies, and yet can’t invest in a decent rail service to get people off the roads. The other group of the disabled have always been the brave soldiers injured in war, and we have a new batch of these in the UK as a result of the military involvement in Iraq and Afghanistan.
The possibility of any of us becoming disabled at some point as well as the development of human rights and the humanitarian ethic in Europe has led to a series of anti-discrimination laws. The UK is way ahead of other European countries in this, perhaps because inclusivity policies save a lot of money on special schools and lost income from those who are able to work with a little help.
Pauline Alexander is deaf, yet a lady with many talents and skills. She has worked in administration and secretarial areas for many years, including work with the society for the deaf, lecturing and writing on contemporary issues. Last year she was refused agency work because the company couldn’t provide the equipment needed. She challenged their refusal on the basis of the discrimination law and won, which means that companies can’t discriminate against agency workers, and must all ensure they are ready to employ disabled people.
She is currently staging a beautiful exhibition of her work in London, which celebrates the humanity of everyone with a disability, and expresses the frustration felt by disabled people in an able world. This is perhaps the next battle, for disabled people to be not just to have their rights recognised, but to be able to feel accepted. But think for a minute, is the world entirely well-measured for those of us we consider to be normal?
If you are thinking in an absolute way, the world today is made for a’perfect human’, usually the young male. Everyone else in our world is disabled by the way we have made it. Everything from the height of shelves to the thickness of doors is poorly designed for women and children. Ordinary kitchen appliances are often difficult to manoeuvre for older people. In circumstances like these, additional tools or aids are required, just as a wheelchair or hearing aid is used by disabled people.
Minority groups usually are the ones who have to fight to improve the lot of ordinary people. When I was a child, disability was hidden, and the first time I saw a disabled person was in College, when I was 19. Thalidomide kids my age, with their shortened arms and legs, were permitted to come to an ordinary college to finish their studies. Since then, I’ve been constantly grateful for the opportunity to teach children with varying skills and limitations, including fighting for a deaf student to continue with her GCSE French, which her school tried to push her out of despite it being her favourite subject and one she was good at, taking pleasure in careful pronunciation, which of course also helped her English too. I have taught blind kids, using special screens, and devised complex physical games which take into account boys in wheelchairs. Great fun, exciting challenge, rewarding to us all, thanks guys, keep coming to my classes please.
Pauline’s wonderful paintings teach us how valuable it is to get to know and work with people with experiences which differ from our own, who can enable us to understand and appreciate each other’s differences and different needs. As we learn to accept the differences between us, we become more able to have positive relationships with people from different cultures too, and with values which are different from our own, which is what being human is all about.
You can see some of her stuff here http://disabilityarts.com/site/pauline_alexander
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©Jill Rees
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